Abstract

PWS Preparations

Prader-Willi Syndrome is a complex chromosomal birth defect that causes neurological disorders, health issues, and insatiable appetites. Lifelong care for PWS patients is complex because their physical health issues cause psychological behavior issues that require unique strategies. PWS patients have unique needs in schools, community programs, and adult care programs and if they do not receive proper care it is life threatening. Therefore, parents must seek professional expert support to develop lifelong preparations with securities plans to foster the best interest of their PWS child. The Children’s Institute (TCI) Center for PWS in Pittsburgh, Pennsylvania and PWSA USA are resources for PWS expert support in America with over 20 years of experience. The challenges PWS families face with adult programs is a crisis that requires national support from the Department of Health and Human Services.


Author(s):

Rhoda L. Ross-Williams



Abstract | Full-Text | PDF

Share this  Facebook  Twitter  LinkedIn  Google+
30+ Million Readerbase
Recommended Conferences
Google scholar citation report
Citations : 158

Journal of Rare Disorders: Diagnosis & Therapy received 158 citations as per google scholar report

Journal of Rare Disorders: Diagnosis & Therapy peer review process verified at publons
Abstracted/Indexed in
  • Google Scholar
  • China National Knowledge Infrastructure (CNKI)
  • Directory of Research Journal Indexing (DRJI)
  • Publons
  • Secret Search Engine Labs
  • Euro Pub

View More »

Flyer image

paper.io

agar io

wowcappadocia.com
cappadocia-hotels.com
caruscappadocia.com
brothersballoon.com
balloon-rides.net

wormax io